Clinical Characteristics of Children With Juvenile Dermatomyositis: The Childhood Arthritis and Rheumatology Research Alliance Registry
Arthritis Care & Research2013Vol. 66(3), pp. 404–410
Citations Over TimeTop 10% of 2013 papers
Angela Byun Robinson, Mark F. Hoeltzel, Dawn M. Wahezi, Mara L. Becker, Elizabeth A. Kessler, Heinrike Schmeling, Ruy Carrasco, Adam M. Huber, Brian M. Feldman, Ann M. Reed, the Juvenile Myositis CARRA Subgroup, for the CARRA Registry Investigators
Abstract
In 2 years, the ongoing CARRA Registry has collected clinical data on 384 children with juvenile DM and has the potential to become one of the largest juvenile DM cohorts in the world. More research is needed about prognostic factors in juvenile DM, and differences in therapy based on manifestations of disease need to be explored by practitioners. This registry provides the infrastructure needed to advance clinical and translational research and represents a major step toward improving outcomes of children with juvenile DM.
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