Identifying relevant outcomes in the progression of Alzheimer's disease; what do patients and care partners want to know about prognosis?
Alzheimer s & Dementia Translational Research & Clinical Interventions2021Vol. 7(1), pp. e12189–e12189
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Arenda Mank, Ingrid S. van Maurik, Els D. Bakker, Esther M.M. van de Glind, Linus Jönsson, Milica G. Kramberger, Petr Novák, Ana Diaz, Dianne Gove, Philip Scheltens, Wiesje M. van der Flier, Leonie N.C. Visser
Abstract
We identified a core list of outcomes relevant to patients and care partner, and found that prognostic information related to cognitive decline, dependency, and physical health are considered most relevant by both patients and their care partners.