A national open‐access research registry to improve recruitment to clinical studies
Alzheimer s & Dementia Translational Research & Clinical Interventions2021Vol. 7(1), pp. e12221–e12221
Citations Over Time
Piers M. Kotting, Adam Smith, Megan B O'Hare, Clarissa Giebel, Lakshini Mendis, Clare Shaw, Imogen Shilito, Martin N. Rossor
Abstract
Public registries of individuals interested in research, with user-provided data enabling basic phenotyping, are effective at increasing public engagement with research and removing barriers to study recruitment. Deeper pheno/genotyping could be undertaken to improve matching, but how and when that information is collected will be a key factor.
Related Papers
- → A novel clinical trial recruitment strategy for women's cancer(2015)12 cited
- → A review of registry research(2021)2 cited
- → Mo1979 Facilitating Retrospective and Prospective Research Recruitment Through Development of a Research Registry(2012)1 cited
- → The Need for National Registry(2015)1 cited
- → TD‐P‐38: ACTNOW: A DEMENTIA RESEARCH ONLINE RECRUITMENT REGISTRY SITE(2019)