Health‐related quality of life in patients with Duchenne muscular dystrophy: a multinational, cross‐sectional study
Developmental Medicine & Child Neurology2015Vol. 58(5), pp. 508–515
Citations Over TimeTop 10% of 2015 papers
Erik Landfeldt, Peter Lindgren, Christopher F. Bell, Michela Guglieri, Volker Straub, Hanns Lochmüller, K. Bushby
Abstract
HRQOL in DMD, measured through public preferences, is substantially impaired in relation to the general population and significantly associated with disease progression. Still, most patients are perceived as happy and in good health by their caregivers, indicating that influential domains of HRQOL remain intact through the disease progression. Our findings emphasize the challenges in measuring HRQOL in a rare, progressive childhood condition such as DMD.
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