Development of an inflammatory bowel disease (IBD) Patient‐Reported Experience Measure (PREM): A patient‐led consensus work and ‘think aloud’ study for a quality improvement programme
Health Expectations2022Vol. 26(1), pp. 213–225
Citations Over TimeTop 13% of 2022 papers
Elena Sheldon, George Lillington, Kati Simpson, Kirsty F. Gibson, Lucy Chambers, Manfredi D'Afflitto, Nancy Greig, Theresa Stearn, Daniel Hind, Rachel Ainley, G Winsor, Katie Ridsdale, Nikki Totton, Alan Lobo
Abstract
Patients were involved as active members of the research team and as research participants to co-produce and validate a PREM for IBD services. In Stage 1, eight expert service users ('the expert group') reduced candidate items for the PREM through a voting exercise and suggested new items. During Stage 2, 18 previously uninvolved people with IBD (the 'think aloud' participants) assessed the validity of the candidate items in 'Think Aloud' interviews as research participants. In Stage 3, the expert group removed, changed and added items based on the interview findings to produce a final version of the 38-item PREM. This study shows how service user involvement can meaningfully inform PREM development.
Related Papers
- → An Empirical Study of the Effects of Three Think-Aloud Protocols on Identification of Usability Problems(2015)21 cited
- → Thinking Aloud in the Presence of Interruptions and Time Constraints(2013)19 cited
- → The Impact of Thinking-Aloud on Usability Inspection(2020)2 cited
- Comprehension in mathematics teaching(2003)
- Comprehension As the Problem in Public Relations(2019)