PATIENTS REGISTRIES WORLDWIDE
Abstract
Introduction: A disease/patients' registry, is a collection of secondary data related to those with particular condition/disease/procedure. Patients registries not only provide health providers and patients with reminders to check certain examinations in order to achieve certain quality goals, but their main role is associated to health research either as a database for clinical studies in a particular disease or (preferably) as a comprehensive cohort study by itself. The aim of this study is to summarize information published electronically about patients' registries. Methods: This short report is resulted from reviewing the electronic databases and websites aiming to collect valid and comprehensive information in regard to the background and frequency of patients' registries worldwide. In addition, using the terms "patients' registries vs cohort studies", "patients' registry vs observational study", "patients' registry vs medical records" the variety, advantages and disadvantages of patients' registries were searched for.
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