Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology
Citations Over TimeTop 10% of 2005 papers
Abstract
The 28-item DEMQOL and 31-item DEMQOL-Proxy provide a method for evaluating HRQoL in dementia. The new measures show comparable psychometric properties to the best available dementia-specific measures, provide both self- and proxy-report versions for people with dementia and their carers, are appropriate for use in mild/moderate dementia (MMSE >/= 10) and are suitable for use in the UK. DEMQOL-Proxy also shows promise in severe dementia. As DEMQOL and DEMQOL-Proxy give different but complementary perspectives on quality of life in dementia, the use of both measures together is recommended. In severe dementia, only DEMQOL-Proxy should be used. Further research with DEMQOL is needed to confirm these findings in an independent sample, evaluate responsiveness, investigate the feasibility of use in specific subgroups and in economic evaluation, and develop population norms. Additional research is needed to address the psychometric challenges of self-report in dementia and validating new dementia-specific HRQoL measures.
Related Papers
- → Analyzing the chance of developing dementia among geriatric people: a cross‐sectional pilot study in Bangladesh(2018)48 cited
- → Dementia Risk Prediction: Are We There Yet?(2010)18 cited
- → When memory fails: helping the Alzheimer's and dementia patient(1994)6 cited
- [The incidence of reversible dementia in 145 patients referred on suspicion of dementia].(2002)
- → Trends of dementia in hospitals with specialized outpatients with dementia(2017)