Psoriasis and COVID-19: findings from PsoProtectMe.

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Abstract

The COVID-19 pandemic prompted the rapid mobilisation of the research community to investigate the impact on people with psoriasis.This led to the creation of the online patient-facing PsoProtectMe registry, developed in partnership with people with psoriasis and patient organisations.Launched in May 2020 and available in nine languages, PsoProtectMe was created to understand the lived experience and mental health burden of people with psoriasis during the pandemic.The registry was far reaching: it had 5479 participants from more than 30 countries worldwide.Here, we review the key findings from the PsoProtectMe registry, which have helped to inform clinical guidelines in psoriasis during the pandemic.We highlight the important role for online data collection from an engaged and motivated patient community in facilitating time and resource efficient research.

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